I had periods that were very irregular to start since I was 12. At 16 I went to my first gynecologist because I was having severe pain in my ovaries. I was told to monitor and note when it happened on a calendar to track them. Also to note when and if I had a period. Unfortunately I wasn’t diagnosed for another 8 years with PCOS. At that time I had gained 100 lbs, began showing more symptoms and it was a physicians assistant who tan test to find it, not even my doctor.

Anyhow, in 2002 I was diagnosed and have since then been on Metformin, progesterone for thickened uterus, 2 biopsies, spironolactone, clomid, which allowed me to have my second child and actually have periods. 2008 I had a period for 6 months(spotty) and had to have an endometrial ablation. Since then I have had 5 periods, 3 of which came after having the ablation, and 2 back surgeries. Then 2 random ones... it is very common for women with PCOS to have the absence of periods, it usually means no ovulation is happening and then what will happen, the eggs that are suppose to mature and move through the ovaries during ovulation, don’t happen, rather they mature get old and then become cystic and when then burst we have pain. It is a horrible cycle for us. I recommend seeking a doctor with PCOS experience or at least one who isn’t afraid to research PCOS for more positive avenues for you health. I at 42, am still working in that one too!

Good luck!

Hi Ladies
I am in the ecact same boat, started period at 14 periods were irregular by 17-18 i thought right it isnt notmal went to see a GP an was put on BC until 21 i came off to see if my body would regulate i had the odd maybe 1 per year if i was lucky. Last 4 years i havent had a single period
So in jan 2017 i was put on clomid it never brought on a period first 2 cycles then 3rd cycle we added metformin an BaM i was pregnant but had a MMC at 12 weeks then after that i did another 3 cycles an nothing no ov no af to add all year iv been taking norethistrone to induce a period even from taking clomid so since Sept my consultant said stop clomid as it isnt working,,, so have been on no meds to add the whole year i was a hormnal monster (poor oh)
In november i had to induce again as had to have tests done again at new hospital been referred for possible IVF.
But since no period i am on cd 83 🤨 if i hadnt induced dam id be well into my 100’s .
Started Myo Inositol 3 weeks today so lets see what happens i do take Vit D & B6 folic acid an Vit C also .
Am i foing right thing ??
Oh an since Jan we have been healthy eating no more fast food mayb on a treat day no more fizzy drinks
More fresh meat an fresh veg sweet potato brown rice& pasta etc xx

Any help or advice an if ise need to chat am always here as i know how hard it is as TTC aswel an not working properly is tough xxx

I haven't had one in almost 3 years. Then out of nowhere this pass February one came out of nowhere. It was an actual normal period. Haven't had one since. I'm baffled and confused too. It makes it really hard to try to conceive. I've almost given up hope. This summer I plan on having the gastric sleeve done. Hopefully getting some of this weight off will help regulate me again and I can start ovulating on my own again. Prayers to everyone dealing with this.

I use to have periods every 32-46 days, it was awful never really knowing when I was or if I was going to have a period. So being fed up and told by my doctor that she didn't want me on birth control due to another medical complication, I did a ton of research on vitamins and essential oils. My periods are now much more regular usually 28-32 days, on occasion I will have a period 40 + plus days out (like twice a year). This is what I take; AM: evening primrose oil, chasteberry, milk thistle, fenugreek. Afternoon: chromium picolinate, dong quai. Evening: maca root. It sounds like a lot and to be honest I take more than this but for other issues. I don't think it matters when you take any of these but I found this has worked for me, to regulate my period. I hope this helps :) I should also mention, I had to take this regimen for about 2 or 3 months before things became regular.

Wow. I have never heard of anyone else with this issue even my doctor said she hadn't either. I've never had a period that wasn't induced by birth control. Same here, I've tried metaformin, topical gels, hormones etc... I'm 27 and now have severe ovarian cysts and I am on bed rest due to the pain. Im so depressed and i don't feel like a woman. Last time I checked woman don't grow mustaches. :( Let me know how your doing!!!!